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Posts tagged patient support

Questions from a Parent of a Newly Diagnosed Creatine Transporter Deficiency Child

Joseph, Thank you for the explanation, it’s concise while remaining non-medical , exactly the right dosage of information to help folks like me

housekeeping on my site

 I’m not sure if I have done any housekeeping on my site in a while, so here are some updates. Concerning appearances, I’ve decided to not advertise when I’m traveling for personal security reasons. I’ll blog on conferences I attend after I have been and gone. The web site has seen continuous growth since its [...]